Fishing tourney to aid child with rare genetic disorder

MOULTRIE, Ga. — A fishing tournament this weekend will benefit a South Georgia family whose daughter has a rare, genetic disorder.

Karison Kohle May was born Aug. 16, 2014, and at about the age of 1 was diagnosed with Joubert Syndrome after a long road of medical tests.

Joubert Syndrome is a very rare autosomal recessive genetic condition. Fewer than 1,000 cases are known in the entire world, according to a flyer the family is distributing about the tournament.

There is no cure for Joubert Syndrome, the flyer says. The only treatments are supportive therapies and monitoring of affected organs and body systems.

At the age of 2 1/2, Karison can pull to stand up and bear weight on her own and can crawl and scoot for mobility, her family said. She can walk with the help of a walker and has been evaluated for her first wheelchair.

Her family is planning to attend their first Joubert Syndrome Conference in July in Phoenix, Ariz., to meet with leading doctors and scientists.

The fishing tournament will be held Saturday, May 6. The entry fee of $40 for a two-person team must be paid by 5 p.m. Friday, May 5. Contact Nathan Avery, 229-891-1819; Coleby May, 229-456-0947; or Amanda Webb, 229-454-1545.

Anglers can fish wherever they wish, but only fish caught on Saturday are eligible. The team’s three biggest bass will be considered. Weigh-in is noon to 1 p.m. Saturday, May 6, at Larry’s Bait, Tackle and Marine, 1305 First St. N.E.

First place prize is a 50/50 payout. Second and third place prizes will be awarded. In case of a tie, the first to weigh in will be the winner.

Proceeds will benefit the May family. Donations are used for research as well as to offset costs for families to attend the Joubert Syndrome Conference.

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